During the summer of 2019, Ekitia (formerly Occitanie Data) undertook to draw up an Ethical Charter for Data Usage in order to make it one of the pillars of the trust framework aimed at promoting data sharing between public and private structures.
A first version of this Charter, the result of a collaboration between Ekitia and the BIOETHICS research team (a research team specialised in ethical issues related to health innovations and attached to the Toulouse III Paul Sabatier University and INSERM), was published in April 2020 after consultation and validation with and by our founding members.
In order to ensure that the content of this Charter is constantly consistent with technological and legal developments affecting the use of data, as well as with the expectations of stakeholders, its content is intended to be regularly updated. In this context, during the summer of 2020, Ekitia organised co-construction workshops aimed at gathering feedback from sectoral experts (mobility, energy, health, employment and training, environment, and agriculture) on this first version, to identify gaps and areas for improvement.
Taking into account this valuable feedback, we have produced a second version of our Ethical Charter (download link below).
We want to include as many people as possible in the co-construction of this Charter, so we encourage its distribution and sharing (under the terms of the Creative Commons Attribution (Ekitia quote) – Non-Commercial – Non-Modification 4.0 International License) and invite those who wish to do so to complete the contribution form below.
